Brain Matters
Stories from the RCD Foundation
Spotlight on Medulloblastoma: Freddie
September 23, 2021
Sunday 26 September is Childhood Brain Cancer Awareness Day, this year the focus is on medulloblastoma brain cancer. How old was Freddie when he was diagnosed? Freddie was seven...
Children's Brain Tumor Network Early-Career Investigator Info Session
September 10, 2021
An opportunity for investigators early in their careers to come together and connect with peers across the countryAn opportunity for investigators early in their careers to come together and connect...
Brain tumour patients and COVID-19 vaccines IBTA international survey
August 5, 2021
Brain tumour patients and COVID-19 vaccines IBTA international survey The International Brain Tumour Alliance (IBTA) is running a new survey on COVID-19 vaccines and brain tumour patients. The...
Childhood Brain Cancer Symposium
May 27, 2021
As part of Go Grey in May, and Brain Cancer Awareness Month, the Robert Connor Dawes (RCD) Foundation and The Kids Cancer Project hosted The Childhood Brain Cancer Symposium on the 26th May at the...
Researcher Thoughts on Paediatric Brain Cancer Barriers
May 24, 2021
The Robert Connor Dawes Foundation asked leading international researchers what they thought were the biggest barriers in the field of paediatric brain cancer research, their responses can be viewed...
Brainy Breakfast 2021
May 14, 2021
A huge thank you to everyone who attended our Brainy Breakfast on Thursday 13 May. And a very special thanks to our inspiring researchers: A/Prof Misty Jenkins, Dr Jason Cain and Dr Pratiti...
Craniopharyngioma Patient And Family Survey
May 6, 2021
We're sharing a survey from The Pediatric Pacific Neuro-oncology Consortium (PNOC) and Children’s Brain Tumor Network (CBTN) who have created a survey to identify the most immediate needs...
New treatment now available for Australian kids with deadly brain cancer
March 22, 2021
Australian and New Zealand children diagnosed with a devastating brain cancer will now have access to one of the most promising treatments available worldwide. Children diagnosed with high grade...
The Robert Connor Dawes Foundation & Pirate Ship Foundation PhD Grant
March 4, 2021
We're pleased to introduce our newest PhD grant recipient, Jamie-Lee Pitcher. This grant is co-funded with The Pirate Ship Foundation, over three years. Jamie's research is titled: Determining the...
Professor Terry Johns + Telethon Kids Research Update
February 8, 2021
The outcomes for children with diffuse intrinsic pontine glioma (DIPG) and ependymoma cancer have barely changed in 30 years. The ependymoma cure rate is less than 60% and DIPG is nearly always fatal....