Brain Matters
Stories from the RCD Foundation
Legacy Ambassador Spotlight - Ken Fleming
July 15, 2021
Ken, his wife Dianne, and their sons were happily living their lives in beautiful Tasmania when their world fell apart in July 2016. Their son Jack was diagnosed with a Glioblastoma Multiforme brain...
Evie's Song - When It's Over
June 22, 2021
When we first read the song lyrics shared by 14 year old Music Matters Grant recipient Evie, the entire RCD team were blown away! We thought they deserved to be shared with the world, and what...
Legacy Ambassador Spotlight: Georgia
June 17, 2021
They don't come much braver than our Legacy Ambassador Georgia Maguire ? Georgia was only four years old when she was diagnosed with a supratentorial ependymoma. Over a period of 18 months...
Legacy Ambassador Spotlight - Olivia Carland
February 18, 2021
In October 2012, 17-year-old Olivia Kate Carland was diagnosed with a brain tumour which was later confirmed as a Diffuse Intrinsic Pontine Glioma (DIPG). Read more about DIPG here In a vast...
Shark Island Swim for Georgia
February 11, 2021
Sunday February 7, 2021 was a perfect sunny Sydney day, ideal conditions for team Sweet Georgia Brown's Shark Island Swim fundraising event. A group of over 15 participated in the 1km and the 2.3km...
Mister Zimi Candle
November 18, 2020
We're pleased to announce in honour of Alfie and Sara Chivers, the team at Mister Zimi have created two limited edition candles. Since the launch of the candles in November, Mister Zimi has raised...
Profiling Ependymoma - Connor Dawes
September 25, 2020
Saturday 26 September is Childhood Brain Cancer Awareness Day, this year the focus is on ependymoma. Robert ‘Connor’ Dawes was born in Wisconsin in 1994, however he spent most of his life...
Profiling Ependymoma - Georgia Brown
September 24, 2020
Saturday 26 September is Childhood Brain Cancer Awareness Day, this year the focus is on ependymoma. Georgia Brown is a beautiful, active five-year-old girl. She loves playing with her sisters,...
Profiling Ependymoma - Olivia Phelan
September 22, 2020
Saturday 26 September is Childhood Brain Cancer Awareness Day, this year the focus is on ependymoma. Olivia Phelan was 15-years-old when she was diagnosed with an ependymoma in January 2017. The...
Alfie Chivers CRISPR Project
January 17, 2020
Hudson Institute of Medical Research is set to receive $226,000 over two years to fund its CRISPR research project, known as the Alfie Project. The project is named in honour of Sara Chivers and...